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VERSION:2.0
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BEGIN:VEVENT
DTSTAMP:20260831T221035Z
UID:505ada6c-bb4b-4638-8baf-f1fd597df947
DTSTART:20171026T070000Z
DTEND:20171027T160000Z
DESCRIPTION:A rare disease is any disease that affects a small percentage o
 f the population\, however a high percentage of population can be involved
 \, in fact the World Health Organization (WHO) consider 7000 rare diseases
 \, affecting 7% of the population. Three million people with rare disease 
 are estimated in Spain.\n\nThe principal challenges regarding rare disease
 s nowadays include:\n\nThe difficulty in clinical and molecular diagnosis.
 \nA specific clinical multidisciplinary management due to heterogeneity of
  the diseases.\nPersistent comorbidities\, physical and cognitive after cu
 re of the disease.\nEffective and safe therapies that can cure the disease
  and delay comorbidities\, improving long-term prognosis.\n\nThe volume da
 ta on rare diseases has grown steadily in recent years\, for this reason i
 t needs a specific technology to handle them. This symposium will focus on
  diagnostic and therapeutic advances in relation to rare diseases and big 
 data and will allow interaction between national and international experts
  on the subject. The proposed topics\, as well as invited speakers\, are r
 elevant internationally and are aimed at improving the final prognosis and
  quality of life of patients with rare diseases through the technology off
 ered by big data. One of the aims of the symposium is also creating a work
 ing group that will aim to find new drugs for rare diseases.\n\nThe sympos
 ium will cover the state of the art in the clinical management of these di
 seases\, as well as current research and future perspectives\, including p
 athogenesis\, epidemiology\, therapeutic novelties\, long-term prognosis w
 ith residual morbidity\, quality of life and drug-economic aspects in the 
 management of these diseases. Its main objective will be to transmit to so
 ciety the advantages and opportunities offered by big data technology to a
 dvance the diagnosis and design of new drugs that benefit the patient.\n\n
 The access to the symposium will be free and there will also be present pa
 tients' associations\, students\, general population\, research centers\, 
 nurses\, and universities\, making it more interactive and educational.\n\
 n\nInternational Symposium: Rare diseases and big data\, from research to 
 clinical practise\n\nFree registration: fill out the registration form bef
 ore 26 October 2017\nDates: 26-27 October 2017\nVenue: CosmoCaixa Sala Àg
 ora (C/ Isaac Newton 26\, Barcelona\, Spain)\nOrganizers: Bioinformatics B
 arcelona Association (BIB) and Fundación Ramon Areces\nWith the collabora
 tion of: "la Caixa" Foundation and CIBERER\n
LOCATION:Carrer d'Isaac Newton\, 26\, 26\, Carrer d'Isaac Newton
SUMMARY:International Symposium: Rare diseases and big data\, from research
  to clinical practise
URL;VALUE=URI:http://bioinformaticsbarcelona.eu/events/35/international-sym
 posium-rare-diseases-and-big-data-from-research-to-clinical-practise
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